We hope that if you have a child with autism you feel fully supported by school but also it is often helpful to go further afield for some support from other parents and organisations.
Neurohub
There is a support group based at Zink in Buxton, Neurohub. More information about what they offer can be found by visiting their website (link below):
National Autistic Society
For parents of children undergoing assessment for ASD or children who have been newly diagnosed.
The National Autistic Society now has a telephone service, run by parents of children with ASD to provide emotional support to others. The telephone number is 0808 800 4106, which you can call at any time, day or night, and leave a message for another parent to call you back at a time that suits you (including evenings and weekends).
National Autistic Society - www.autism.org.uk
0808 800 4104 - Autism Helpline (open 10am-4pm Monday to Thursday and 9am-3pm on Fridays).
Ambitious About Autism
A website with lots of information and a useful section on understanding different aspects of autism.
www.ambitiousaboutautism.org.uk
www.ambitiousaboutautism.org.uk/understanding-autism
Autism Central
The Autism Central website has information to support parents. In their events section you can choose to look for events in this region (Midlands) which are available.
Autism Girls Networ
A charity aimed at supporting girls and women with their autism diagnosis. There are also sections for parents and other family members who are living with an autistic girl.
Contact
This charity supports families with a wide range of facilities. They have workshops available online covering a wide range of needs. They also have a not for profit online shop which sells a wide range of sensory equipment.
Contact - for families with disabled children
Autism Education Trust
The Autism Education Trust have information on their website to support parents.
If your child has been diagnosed with ASD the Child Development Psychology Team at Chesterfield Royal Hospital run “Starting Off” workshops here in Buxton. Anyone interested in reserving a place and finding out the dates of the workshops should email CRHFT.CDPAdmin@nhs.net.
CAMHS also hold information session here in Buxton for example on “Managing Sleep Problems” To find out the dates of these sessions and to reserve a place parents should email CRFHFT.camhsadmin@nhs.net.
For those able to travel further afield, Space 4 Autism in Macclesfield runs a whole host of groups and activities for children with ASD and their families. www.space4autism.com
Although not autism-specific there are a couple of other charities in Buxton who run groups and host events for parents and carers of children with the full range of additional needs and disabilities. Aspire, who are based on Eagle Parade in Buxton, run a sibling support group for children and young people aged 5-17 who have a sibling with a disability. The email address of the co-ordinator is Julie@vcspd.org. Aspire can also provide 1:1 support for children and their families where their social care needs are assessed as exceeding a particular threshold.
Derbyshire Parent Carer Voice occasionally host workshops in Buxton, the last of which was about managing challenging behaviour and received excellent feedback. The best way to find out about their events is through www.facebook.com/derbyshirepcv or their website.
Many children with ASD benefit from the use of sensory facilities. Locally, Fairfield Children’s Centre has a small sensory room that parents can book, for free, to enjoy with their children. Their telephone number is 01298 74936. However, for those able to travel further afield, the Space Centre in Preston is amazing. They can have some problems with their website at the moment but ordinarily parents could find out more at www.thespacecentre.org.
Both IPSEA and DIASS provide excellent advice about the law relating to special educational provision.
https://www.derbyshireiass.co.uk
Caudwell Children
Caudwell Children is a charity which can offer support (depending on family income) with sensory equipment and workshops to support parents with different aspects of autism. Their website gives details of the support they offer and the criteria you need to meet.
Family Fund
The Family Fund have grants available (depending on the family income) which can support with a range of equipment and support. They also have a section on 'Wider Support' which has links to other organisations.
Many parents of newly diagnosed children are advised to apply for Disability Living Allowance and there is some useful guidance on the Cerebra website in the Parent Guide section.
The Derbyshire Local Offer has more information about autism and the support available. If you go to their search option and type in 'autism' it will bring up the relevant sections.